We developed this project with Jackie Walumbe, a doctoral research fellow in primary care health sciences and physiotherapist working in pain services, whose PhD investigates the gap between current pain management practices in the NHS and the wider ‘socio-material entanglements and relational aspects of living with chronic pain’.
“Working with Design Science has allowed me to translate some difficult and counter intuitive concepts into meaningful and understandable media.
Jackie’s research asks three questions:
Through workshops and creative research we co-designed a visual guide to ‘pain care’ – reimagining the NHS’s approach to pain management by placing people’s experience of pain at the centre of a future service paradigm.
The document we developed shares Jackie’s research, explains how patients ‘care for their pain’, identifies things that the NHS gets right and wrong and suggests ‘a new future for pain care’.
Our process involved asking the wider health and wellbeing community to co-design a people-centred pain care journey and share some examples of ways of communicating pain care within the NHS and consider how society might engage with the complex set of issues that underpin pain from a personal and cultural perspective:
“I have found these materials invaluable in communicating my work with different audiences, including people with lived experience, their families and carers, clinicians and decision makers.“
Following these outputs, we worked with puppet maker and animator Rachael Olga Lloyd to develop this short video on ‘The future of pain care‘.
“I love it! ‘Pain care’ feels like it works on many levels. From feeling cared for by HCPs/medical system through to ‘Pain self care’… gentler, more aware and kinder.”
In the next phase of this project we’ll be running further workshops with patients and practitioners to understand what works and what doesn’t work both within the NHS and in wider society, and use this understanding and Jackie’s deep research to reimagine pain care from a human centred perspective.
Are you examining global challenges that would benefit from critical and thoughtful design research? Do get in touch